Today we got back the last of Brinley’s genetic tests and also met with her neurologist. All the genetic tests came back normal so that’s good and bad. Good because it canceled out a lot of scary diseases but bad because she could have some scary disease that isn’t named yet. The next step is [...]
Brinley’s Tests Are Back…And Other Fun
Family Pictures
As a gift to Brinley (and us) while we were in the hospital, our wonderful neighbors raised money and bought us some family pictures. They got them framed and delivered them yesterday. They turned out so beautiful! We are very grateful for the good friends in our lives! Check out a few of our favs.
Freakin’ Sweet Painting
I give Aaron all the credit for this masterpiece. He found the metal artwork, painted the wall, and hung the painting. Now we finally have a decoration up.
Brinley Meets Aslan
This weekend we had a barbecue at Katie’s to celebrate her birthday. Katie and Spud’s puppy Aslan provided a lot of entertainment–especially to Brinley . We’ve tried to get Brinley to notice the dogs in my family but she’s never paid much attention to them. Not only did she notice Aslan but she thought he [...]
Peas or Poop?
Brinley tried peas for the first time a couple of days ago and it didn’t go over too well. Made for a great video though! Sorry about the shaky camera action I was laughing way too hard.
Oakley Pioneer Days
This weekend we went up to Aaron’s hometown in Idaho for their Pioneer Days celebration and for the Hardy family reunion. We took our new minivan out for its first big trip. I loved it because I could go snooze on the back bench. We were excited to get to our hotel and relax before [...]
Swimming
We have this great new community pool nearby. It has a large pool with a kiddie beach and some other fun slides and stuff. My favorite part is the lazy river that goes around it. I decided yesterday to put off cleaning my house, working on paperwork and other things that needed to be done [...]
We’re Home!
Just a quick update to let everyone know that we’re home from the hospital. Brinley was so good while we were there but she was ready for more space and so were we. We got home last night to a giant sign that said, “We Love You” on our driveway. We have the greatest neighbors! [...]
Brinley Update
First of all, thanks to all of you for your kind comments and emails. We really appreciate them and they help out a lot. In difficult times like these it’s nice to know you have family and friends who care and keep our family in their prayers. Brinley had a fantastic day yesterday. She was [...]
Brinley’s Diagnosis
As many of you know, Brinley has had a lot of struggles since birth. We’ve been going from doctor to doctor looking for answers but with little success. Yesterday, July 10, we received a partial diagnosis of the underlying cause of many of her health problems. Brinley has been diagnosed with Hypomyelination Syndrome. If the [...]