Roller Coaster
Brinley’s life (and thus our lives) is very much a roller coaster. She might have a few days where she does all of her physical therapy very well, eats without pinching her lips and gagging, and is at the top of the roller coaster. Then there’s a few days where the roller coaster drops…this is when she refuses to pick up her head, gags every time she tries to eat, and just seems too fatigued to do anything. The last week or more we have spent at the bottom of the roller coaster. It ‘s made for some very frustrating times. So when today I saw her start her day with a laugh so big she was snorting, I knew we were back to the top of our roller coaster…oh sweet joy!
This is what caused the snort. She thought my stomping was really funny.